Running a half marathon is tough—tougher still with respiratory disease.
“I’ve had Recurrent Respiratory Papilloma (RRP) for the past 7 years,” says Megan Conley, of Hoboken. “It’s a bitch of a disease (and quite rare) with no cure.”
RRP is a disease caused by the human papilloma virus (HPV) that involves recurring tumors in the larynx, vocal cords, and occasionally all the way down through to the lungs.
“It causes me to sound pretty funky, and at times have low super energy,” says Conley, adding, “I’ll save you the sob story though—because that’s not what this is about. While at times I struggle physically, my voice is something no one—not even this disease—can ever take from me. ”
On Saturday, Megan will be running the AirBnB Brooklyn Half Marathon.
“I decided to create a page where all proceeds are donated to a foundation that helps research on the disease,” says Conley. “They’re called the Recurrent Respiratory Papillomatosis Foundation (RRPF).”
The RRPF was created to provide patient/family support, serve as an information resource for patients and practitioners, promote public awareness, and aid in the prevention, cure and treatment of RRP by encouraging and participating in promising RRP research studies.
To help Megan raise funds and awareness as she takes on the Brooklyn Half, please visit:
“Any level of donation you can make would be much appreciated, and (of course!) 100% of them go directly to the foundation,” says Conley. “And please, absolutely feel free to share with friends, family (uber drivers?), whomever!”
CLICK HERE for more information…